A little table dance by older brother as dinner entertainment. Quickly stopped (after photo was taken) as the three other Bangles were ready to join in.
July 11, 2008
'Happybirfffdaytoyou'!
A little table dance by older brother as dinner entertainment. Quickly stopped (after photo was taken) as the three other Bangles were ready to join in.
The Zoo
Oh, I loved it. On a bad day I would yell out to the kids, "Put your suits on!" I'd grab the beach bag and we would be on our way. Life is easier while sitting in the sand. The roaring waves drown out the bickering of the kids. Definite bonus.
What to do when stressed in the middle of the Rust Belt? Seth started his new job and I took the kids to the zoo. The zoo can't hold a candle to the Gulf Coast. The only thing the beach and zoo have in common is that they are unpleasant places to be 'in season'. Crowds stink.
I bought a wagon on the way there and a family membership once we arrived. That first trip was a little stressful because I didn't realize that the wagon was 'assembly required'. I had no hammer for mounting the wheels so I pulled Ella's prosthetic leg off and used that. Imagine the stares I got in the zoo parking lot using a leg to bang down wheels on a wagon. Who brings an unassembled wagon to the zoo, anyway?
The same kind of lady who brings five children to the zoo by herself.
Today is Salomae's fourth birthday (I'll do a birthday post later). Our plans for the day changed. I hate changing plans on the kids because they just. don't. understand. They usually blame me. So last night I just didn't tell Sal that the plans had changed. Then, she prayed and told God that "'kumorrow' see elephants, cake, ice cream...happybirthdaytoyou." I knew that I would have to brave the zoo on my own.
I brought the double jogger and the sling. We packed a lunch, got the camera, and pulled out of the driveway. Then pulled back in so that Everett and Sally could go potty. Then had to pump up the tires on the stroller. Then we were off. I was already tired.
The kiddos really are good or I wouldn't dare to do the zoo. They really were excited or I wouldn't do it either. Before we left, Sally kept chanting, "See the elephants!" I knew that deciding to go was the right decision. She is the princess today, after all.
Don't be deceived, that's just a picture of an elephant.
We saw the elephants, then added other animals asI said, "Why? Are you trying to find someone to help you with your unruly child?"
Only kidding.
I said, "Yep. All five are mine, I'm used to being alone with them. They are pretty good or we wouldn't be here." I smiled. Because that is the kind and appropriate thing to do.
Then she said, "That sure is a lot of kids for one mom."
I smiled again at her and wondered if she plans on encouraging her husband to marry a second wife when their family grows. So she can have some help. I'm pretty sure polygamy is illegal, right? Probably should have told her that.
July 9, 2008
Links
When I posted about Salomae's back a few weeks ago, one of you kind readers gave me a link to another mom who has a daughter with Pott's disease (spinal TB's other name). I just read on her blog about a mom and her son who went into surgery this week to correct his spine. Go over there and read what her past two days have been like and start praying for her son Isaac.
I'm terrified of what Salomae's next year may hold. We visited the orthopedic surgeon today. He said that the brace is helping her to straighten up, but anticipates surgery before the 6 months on medication. Please pray for Salomae's health--that the medication would be effective and her back would be strong enough for us to wait until after the 6 month mark for corrective surgery.
On a much happier note--Josiah is 9 months old today! He's the wiggliest baby and trying to crawl (with extended family cheering him on). I discourage any crawling or pulling up that I see. It will only make my life more complicated. Maybe he can start crawling at about 2 years of age? Doubtful. He pulled up in the crib two days ago. Dear me.
Vacation
June 30, 2008
Biopsy Success
Delightful. As nasty as that sounds, it's good news. We can hope that over the next few months some of the TB bacteria will grow so that we can be sure it isn't the strain that's resistant to medication. The hematologist called me Friday to let me know that the bone marrow came back fine. As far as she's concerned, Salomae is as healthy as can be (not even anemic!).
We started medication on Friday. The nurse came over as the kids were waking up and Seth was getting home. She made a big display of helping me to dispense the medications. It's not that difficult. Four suspensions, four gulps by the little girl, four times Mommy counts and coerces. With the nurse present, she called the pharmacy to make sure we were doing the right doses, all the kids came streaming out into the living room to watch, Seth had to pepper the nurse with questions (mostly related to whether she was required to be there), and the whole thing just seemed more complicated. We left town that afternoon and I've managed to give her the medicine (on vacation) without fanfare for three days now. She's getting smart about it and yesterday I had to give her a swallow of coke to help her get them down.
Thank you for all of your emails and comments before the procedure and since then. Sorry I've been so late in posting about the day.
June 23, 2008
Just another day
Nine Years Ago...
Now nine years later with five children and insurance, but still just as irresponsible as ever. We are obviously in dire need of a family portrait!June 19, 2008
We have a date
Yeah, nevermind.
I finished that last sentence and my cell phone rang. It was our infectious disease specialist (from here on out she will be known as IDS, to ease the burden on my fingers). She met the surgeon today and he told her that he wasn't going to do the surgery. He felt it was too dangerous. So we are going to have a procedure done Tuesday to try and get some fluid from her lungs. Perhaps there will be a bit'o'bacteria that can be cultured.
I can't believe that I started this post four days ago (today is June 23).
The scoop as of this very moment (subject to change)...Salomae is having a bone biopsy done on Thursday (since the lung juice was probably not going to work out so well). Hopefully, Friday she will start medications for TB. We saw a pediatric hematologist this morning who is concerned and wants to get some bone marrow from Salomae on Thursday while she's knocked out.
I'm going to post this right now before things change again!
June 15, 2008
Happy Father's Day!
Ahhh, take a closer look! Eli was screaming, "There's an ant carrying a piece of bacon in here!"The kids today after church today.
June 13, 2008
By the numbers
Our week by the numbers:
7- Doctor's appointments this week.
6- Doctor's appointments (out of 7) with all five children in tow.
6- Times I've been told by nurses that my kids are very well behaved and get along so well.
20- Pounds that Josiah weighed at his well baby check-up.
1- Shot that the doc convinced me to give him today.
2- Times we were caught going into doctor's offices during a downpour.
4- Times I've been asked if I run a daycare (just this week).
10- Minutes I was stuck outside of the Sunoco restroom with 5 children as I spoke to the beer delivery man about me not running a daycare. Then about which kids were mine. Then about where they came from. Then about whether I was married and if my husband had a really good job. Then about Sally's hair and who would do it later, because "she's probably going to need treatments." Evidently, this particular beer man also runs a salon downtown.
4- Times that my "limp home mode" light came on in my van.
6,000- Miles it's been since I last had my oil changed. Whoops.
4- Hours it took to get my oil changed today. We left the van after I heard the wait time.
3- Blocks from the oil changing guy to our house.
21- Pounds of strawberries we picked with our friends on Wednesday.
9- Pounds of strawberries we brought home. Salomae and I cut and washed all 9 pounds last night.
266-My initial tab at the grocery store Wednesday; it was a record setter. After coupons I spent merely $250.
1.60- My savings per gallon the next time I fill Moby up because of the expensive grocery bill.
3- Visits to the Orthodics office for him to get Salomae's brace 'just right'.
1- Little yellow-Dumbo-covered back brace that now sits in the girl's bedroom alongside a prosthetic leg.
2.52- My total today at the "Old Tyme Candy Shoppe" after allowing each kid to pick out 10 pieces of candy from the bins. Does it seem quaint because two words are misspelled? It was the hot pink exterior and the sign saying "2 cent candy" that drew me in. And the fact that we would be walking past the Longhorn Saloon on our way there. I just adore the smell of urine on a hot, muggy day. Life lessons abound during weeks like this.
30- Minutes in the candy store. Average time spent picking out each individual piece of candy= 3 minutes. That's a long time to hold a 20 pound wiggling baby in small aisles with colorful jars stacked on rickety shelves.
5- Mornings I have managed to get up before everyone else and be alone with God. He's the only reason I made it through the past five days without injuring someone.
June 10, 2008
The scoop
The MRI showed that Salomae's infectious mass is only in front of her vertebrae (this is good news). Her spinal cord is draped over the mass, and her vertebrae are in a precarious position (very bad news). The doctor then informed me that most children under the age of 5 who have this are paraplegic. Since they are in developing countries, their parents don't get them medical help when the lump on their back shows up. Their bones deteriorate until one morning they can't move their legs, or perhaps they fall and injure themselves. When he said this, I stopped my note taking and sat their for half a second thinking about all of the bike accidents, sliding headfirst down the slide, flying off the hammock...and I almost wept because any of those things could have paralyzed Salomae. We are getting a brace for her back that will protect her from causing permanent injury to her spine. Until then, no physical kid activities because one fall at just the right angle would mean she spends the rest of her life in a wheelchair.
The doctor was hanging up with me to consult a general surgeon about our case. They had scheduled an appointment for us at 2:00 with this surgeon, "Can you make it?" Uh, yeah. I tried not to think about the madness that would ensue in order to leave the house in 45 minutes (I had gone for a run and was still sitting in my sweaty clothes, no lunch, baby on my lap having a bottle). Thankfully, I have a friend who is able (and willing) to watch my four children.
This surgeon will perform the biopsy that we need in order to successfully diagnose Salomae's infection. Most likely, it's tuberculosis. I know, freak out. We already did. Fast forward to our appointment at 2, which turned into 3:15...This doctor comes from the Big City only once a week. He expressed how lucky we are that there are two fantastic pediatric orthopedic surgeons at the hospital (who we already saw). Otherwise, we'd be traveling an hour or more to a children's hospital for these appointments. This doctor immediately put me at ease as he reminded me of the pastor who married Seth and I. He is a kind, straightforward doctor and explained things in a very clear way.
**Only read further if you want the nitty, gritty details**
We have three stages ahead of us. First, diagnosis (requiring a biopsy). Second, medication and then, surgeries to 'fix' her back. The biopsy is presenting him with a little difficulty. The mass is unapproachable from her back, so he will have to get it from her chest. He could try a needle, but perhaps won't get enough tissue for diagnosis. He could do it laproscopically, but same issue-not enough tissue. Perhaps even complications because of internal bleeding. Third option is to slice into her chest, pull back her ribs and access the stinky glob of infection from there. He said that would be the safest bet. Which seems weird to me. At any rate, he's trying to weigh everything to make sure we do what is best. She has a lot of major surgeries ahead of her, we'd like to have the least invasive procedure, maximize the amount of tissue for biopsy and culture, and keep her safe. He's consulting with a radiologist, pathologist, and the orthopedic surgeon. Then, he will call me today with a plan.
We should be visiting the brace-man today for measurements to order the back brace. I've been taking my older daughter there for 3 years for a prosthetic leg. Now the leg-man is the brace-man, too. I needed to talk to them about a new foot anyway, killing two birds with one stone is so nice.
I hope I don't sound lackadaisical about the dire situation that my daughter is in. The only thing I can do is thank God for his provision this far and pray that He continues to keep her safe. Beyond that, I don't know what to do except follow my notes that say, "no bike or hammock". Please pray that she stays safe and the doctors have wisdom in determining treatments and surgery.
June 9, 2008
Instead of the long story of my day--I'll give you this poignant post from Mary, her sister is currently volunteering at a hospital in Ethiopia. I couldn't help but imagine MY baby as the one she wrote about.
June 7, 2008
Travelers
As long as they blog. I'll amend that--as long as they blog better than I did while WE were there and don't blow up any cameras or lose memory cards.
Visit the Kidds, Cordells, Gardners, and Wests! Pray for them as you read about their week.
June 4, 2008
Driving around Addis
While we were in Ethiopia, I kept having these 'I wish the kids were here' moments. I wanted to transport our experience home with us. So I asked the cameraman (lovingly dubbed Seth) to record everything we did. He was pretty annoyed.
Riding around town was an experience that my kids would have loved. I would have been a ball of nerves...no carseats, seatbelts, or even traffic lanes. I kept harping on Seth to "RECORD this!" When I was at the hospital yesterday, I put this together while I waited (3 long hours) for Fetya's MRI to be done. The kids got a kick out of it and I thought I'd share it with you.
June 3, 2008
One Month
May 31, 2008
Bedtime
When he got tired of that, I started laying him on his side. The side thing alone was the solution for about a day. One night, he kept waking up. No, that sentence isn't strong enough.
He...KEPT...waking...up!!
Every single stinkin' time I let my hand off of his back. He would flop his arm over and his eyes would fly open. Argh, the frustration! I've got things to do (like dishes, reading books to the older four, laundry...), I can't stand all night long with my hand on his back. Frantically, I looked around the room. What could I possibly do to keep him asleep?
I saw the answer--a teddy bear that sits on my dresser. It was perfect. Within arms reach and big enough to fake Josiah out. I know, "Teddy bear on her dresser? I underestimated your flaky factor, Apryl."
This isn't just any old bear.
My grandpa died almost three years ago. He had the opportunity to love on each one of my older three kids. We brought Ella home shortly before he got sick. The first time he met her; he was in the hospital. He never knew of our decision to adopt again. He was a very distinctive man; a full-time farmer with a law degree. I remember him in a button down blue shirt working on the farm (or watching the news). The shirts were soft and thin from wear. A woman from hospice told my grandma that she would make her some bears from his old shirts. My grandma took her up on the offer, and the one she gave me sat on my dresser.
Tonight, Josiah woke up, rolled over, and looked up at me. Then, just as I was about to pick him up, he reached out and patted the bear's head until he fell asleep.
May 29, 2008
What you hoped to see a month ago
The non-Scoop
I'll tell you what we do know:
Salomae has a pretty bad case of kyphosis.
The x-rays show that 4 of her vertebrae have been affected.
They are being "eaten up" from the inside out and currently resemble wedges instead of the nice cubes that they should be.
She hunches over a little as a result and has a visible lump in her back.
According to what we know of her past 9 months, the kyphosis only became apparent in the past 3 months. Which means her situation is digressing rather quickly.
So, the plan:
The pediatric orthopedic surgeon that we saw last week is going to do a biopsy to see what we are dealing with. Salomae will have to go under general anesthesia for the procedure, because he's inserting a large needle into the middle of her back. She's also going to have an mri done relatively soon so we can see how close the deterioration is to her spinal cord. The specialist was surprised that she wasn't suffering any neurological deficit as a result. After yesterday's appointment, her case has been put on the fast track.
Thank you for all of your prayers regarding her health. She's indeed a very healthy kid (serious medical issues aside). I'll keep you updated as we learn more. Wish I had more to tell you, but once again don't want to tell you one thing and it end up being something else. Praying that we get the ball rolling as soon as possible.
May 27, 2008
Is once a week enough?
We are maintaining a level of sanity, cleanliness (unless you count yesterday), and happiness that I wasn't expecting before we came home. By the end of the day all of the maintainance on my part has me totally worn out. Then, evening comes and I get to wake up twice to keep the chunky monkey...well...chunky. Occasionally, one of the older four children will do the muscial bed routine with Seth and me. It's pleasant--three bodies crammed into the double bed. Real cozy. Josiah wants to sleep with us, and usually he gets his wish at about 3 am. My mommy mind is so groggy that I...just...want...sleep. He sleeps with his legs and arms spread eagle, by the way. I kick the older child out of bed to make room for the baby. Does it sound like it's nuts? If you saw me you would probably say I look tired. I am tired.
I'm also happy. All of the kiddos are doing well. Today, Salomae and Eli had a true brother-sister moment. They fought. It was so sweet. They are becoming best buddies (though a lot of what I say is sarcastic, this really isn't, Eli is the favored sibling). Which is completely unexpected. That said, this afternoon, we put up bunkbeds in the girls' bedroom and that become serious bonding time. Ella and Salomae were dancing around the room singing, "We got bunkbeds!" Oh, happy day! They have been in bed for 2 hours and they are probably still awake with giddiness.
On the medical front: we will see a specialist tomorrow for Salomae. I'm planning on posting afterward to give everyone the full scoop on what we are dealing with. I haven't wanted to go into detail and have to recant what I said. So I've waited. Sorry, I think most of you have wondered and worried since the situation seems to be shrouded in mystery. It's not exciting. It's not communicable. Hopefully, prayerfully, it's not as bad as we are expecting.
I think, honestly, I've been lax in posting because I still can't get my mind around everything we saw in Ethiopia. I'm busy, but three weeks later, I still find my mind reeling from our experience there. I keep looking at our kids with disbelief. I don't remember having these moments with the older three kids. Poor Josiah, I can hardly keep myself from covering him in kisses everytime I hold him. He laughs and laughs.
Salomae probably thinks I'm weird. She starts jabbering all the English she knows at me, "Daddy, ciao, work? Fettie, banana? Juice? Mommy? Shoes? Jacket? Bye, bye, church?" It lasts a while, because she returns to the beginning of the routine and just starts over.
I just stare at her as she talks. I'm astounded at her ability to overcome all she's been through. Occasionally, I find myself with my hands on her cheeks. Just because she's here.
May 20, 2008
My baby is growing SO fast
Today, I was rocking him before his nap and was struck by how much he has changed in the past month. I don't want to bore you with a list of all the incredible baby things he's doing right now. So, I'll just give you some cutie-patootie pictures of our ever-changing boy.
Mealtime is number one priority. It takes a lot to maintain that physique! In the first photos, he's so pleased about sitting in his little seat. Little does he realize he's about to taste green beans for the first time. Didn't go over so well. I discovered that (like big brother Eli) Josiah will eat any table food I put in front of him. Baby food...why bother? Probably shouldn't have fed him that portion of garlic mashed potatoes at the wedding reception. Good thing he missed my dress and only lightly splattered the floor and stroller.
Before green beans:
After green beans (trusting Mommy a little less now):
May 15, 2008
Blessings
May 14, 2008
All before noon
Everyone came out clear. Even me, I dug through my hair with the comb. I'm the one who has cuddled and slept with Fetya...for almost two weeks. I can't imagine those little guys not crawling over to my tempting scalp. So far so good. I slipped into serious mode and barked out orders to the kids. Completely forgetting that Fetya doesn't understand, "Quick, go strip your bed!" After beds were stripped and linens in the basement, I scrambled to the bathroom. All four kids stripped down then scrubbed their heads with the lice shampoo. Still not sure if this is lice, but it's the best guess I have. Then I sat down, still in jammies, and picked through Fetya's hair. Everett documented a good part of the morning.
Here we are, spending some good quality time together--chimp style. Nothing says lovin' like having your mom pick bugs out of your hair. Oh, and the baby, gotta have him in there. He CERTAINLY wouldn't be pleased if he wasn't a part of the bug removal process.
Nit removing is SO relaxing. Any of you moms who have kiddos that won't go down for a nap? Try this!
Jo slept only long enough for me to throw in laundry load number three and mop the kitchen. After that he was ready for some more bug eradication. Here we are enjoying some time together vacuuming up any leftover buggies. I feel so much better drinking calorie loaded frappucino and eating Kisses after the vacuum workout. I get to do this at least twice a day!
I finally sat down to answer the phone. Load number 5 is in the washer. I still have at least 2 more loads to go. It was dear hubby on the phone. He was calling to inform me that he's going to be late...very late. So, I'm taking a break. Enjoyed sharing my morning with you--I think I hear the dryer buzzing, back to work!
May 11, 2008
Happy Mother's Day!
I couldn't answer. As cheesy as it sounds, I couldn't narrow it down. So I gave her an incredibly lame answer, after doing my famous "uhhhh" for a full 5 seconds. I said, "Oh, lots of things." Then I watched her write that down and thought about how stupid it sounded. It bugged me. Really bugged me. So, today, while feeding Jo, I had a smidge of time to think about a few of the things I love about parenting. Since it's Mother's Day it seems appropriate to share them with you. I know that many of you are wanting deep, introspective things to be posted, but I don't have the fortitude or time for it now. I promise--coming soon! As a tide-me-over, check out the picture of the kids. I lined them up in order (excluding Josiah, since he's obviously not older than Everett) so you could see how Fetya actually is 3 year old size. Planning to just keep her birthday as given--she will be 4 in July.
Josiah (7 months), Everett (7 years), Ella (6 years), Elijah (5 years), Fetya (3 years)
And now for my top 5 "I'm lovin' parenting when..."
1-I can sit and watch my kids play and love on each other. My heart is full to bursting when I watch them enjoy each other. Not to say that I don't get my fair share of playing WITH them, but that is a wee bit different.
2-I catch (on the sly) one of my children making the right decision when the wrong one is soooo enticing. I usually have to fess up on seeing them and I always say, "You bless my heart!" Eli sometimes comes up to me and asks me, "Did I bless your heart then?" Love it!
3-A lightbulb goes off for one of them and they finally 'get' something that they have been struggling with. Learning is really cool; especially when you watch it happen for someone else. I'm a total nerd, I know.
4-I see how much my kids adore Seth. And I see how much he adores them. Don't be misguided and think our house is all just giggles and kisses. We have our fair share of grabbing and smacking, too.
5-Bedtime. I LOVE spending time with each of my children. I honestly enjoy them. Really, I feel like I need to convince everyone of that. I'm not at home because I'm being punished. I like these little people! But, they wear me out. Now that there are 5 of them, they really wear me out. That said, there is immense satisfaction in knowing that each one of the kids is happily tucked into bed. Then I sit and catch up with Seth and peek in on them so cute and cuddly in their jammies. Love it!
Okay, I have to add a number 6. I really love to hear my kids pray. We pray at mealtime as a family. We also pray before bed. We listen to each one of them pray and I'm always astounded at what they have going on in their minds. Fetya caught onto our prayer time already (they pray before each meal at Kids Care) and the past few nights she has repeated everything I've said as I'm praying (lots of 'Thank you for...'). Which works. Tonight was better though--she prayed in Amharic by herself after I prayed. I caught some "Mommy, Daddy, Jojo" in there. I didn't understand anything else she said, but I was in awe of this little girl who can adapt so well, so quickly. Here she is talking to God about her family. I love listening to each of my children as they lift each other up to God.
I hope everyone has a wonderful Mother's Day! I will work on posting about Fetya's health and the recent not-so-many answers we've gotten regarding that.
May 9, 2008
Happy Birthday to Seth!
He's also got a great wife who surprised him with a jersey from Ethiopia. Incidentally--he asked Robel if he could buy a jersey, but Robel was already buying one for me so he told Seth that he was only allowed to purchase one at a time. Seth said he thought it was an awfully strange rule, but just shrugged it off.
May 8, 2008
Flying Solo...day 1
Fetya found Ella's tea set and made coffee for everyone. "Buna, okay?"
Blissful naptime! The big kids haven't taken naps for a while, but wanted to be with their sister. I was overjoyed.
Within half an hour of the three kids falling asleep, Josiah woke up. I should have expected that. Just enough time to do a quick run through the house, but not enough time to actually relax. Everett saved the day. He 'begged' to have some quiet time with his baby brother. I, of course, relented.